Days of our Lives on Instagram: "Soap naps ARE all in a “Days” work 😉 #daysofourlives #days #dool #goodhangwithamypoehler"

Zoo Knoxville on Instagram: "She’s doing her best, everyone… 😅 Meanwhile baby gorilla is enjoying just another cozy nap with mom. 🦍💤"

FOLLOW-UP from the 24-hour Nap: The 24-hour Awake Time. As I said in the previous video, this happens between 4 and 5 times a month usually. The good thing about the awake Days is that she is normally in a really great mood to begin with and by the end of the 24-hour week, as anybody would be, she's kind of rough lol. This doesn't necessarily mean every child with CDKL5 will have this issue, this is just something we experience and I have talked to other parents that have experienced it as well.

Taking a Nap with My Boyfriend: A Fun Time Lapse